Tuesday, December 14, 2010


Isn't it true that we always want what we don't have or what we used to have. How many times have you heard a parent of a child with spina bifida say, "I'll never take my legs for granted again," or "I'll never take my health for granted," or whatever, fill in the blank. There are many things that I have never thought to be thankful for until my eyes were opened. You don't have to have a child with special needs to relate to this aspect of human nature of course. Haven't we all wanted a better car, a better cellphone a better job? Haven't we all wished for something that we once had- the "good old days," the loved one who is gone, or summertime?

This year, as challenging as it is, I am trying to be content with what I have now. Not, things I wish I had or things I used to have. I don't want my joy to be dependent on things that we're not given to me.

It is painful everytime I see Carson linger behind in his walker while other children run past, it's painful to watch him struggle through a task that would take others only seconds to do, and it's painful to worry about his future. But the greatest pain I feel comes when I find myself wishing and wanting things for him that simply are not for us. This is a dangerous rut that seems to hibernate in depths of myself somewhere and there are days when it all but consumes me. There are days when I just feel bitter and sick of Carson having to be the underdog all the time. There are days when everything just seems unfair. Those days are painful but also self-inflicted. Choosing joy means that I choose to see the gifts that have been given. And Carson is very gifted.

Carson's life has given me so much joy. It is the single most important and significant gift I have ever been given. And although his life meant new fears and new territories for me, God has also given me gifts that I could have never imagined. Choosing joy in our family means that we will never let the gifts that weren't given overshaddow the abundant ones God has given us today.


HennHouse said...

Weeping at this.

You write so profoundly and beautifully.

Thank you for sharing your heart.

Summers Family said...

So beautifully written and so wonderfully true!

Choosing joy in our family means that we will never let the gifts that weren't given overshaddow the abundant ones God has given us today. This is a powerful statement and I love it! Thank you for sharing your heart. BTW - Carson is looking so grown up and still adorable.


Leigh and Andy said...

Nothing like a good cry in the morning! :) So beautiful Emily, and so so true. Thanks so much for the awesome reminder to always choose JOY!! Love ya!

krousehouse said...

You are so very right. Thank you!

laura said...

Beautifully said...Thank you:)

Joanna said...

Yes. Choosing joy because we do have SO much to be joyful about! :) Great post, Emily. Oh - and I just noticed how our blog addresses are identical - ours is babyboypenny.blogspot.! lol.

Susan M. Nelson said...

well said, Emily. I have to say I can see you choosing this joy. You are a great mom to Carson and it has been amazing to watch you grow into your role as his mommy.

Holli (and Mark) said...

tears here too. soooo beautifully written, sooo amazingly true. thank you for sharing that. an awesome reminder!!!!!