Last night we asked people to pray specifically for Carson’s head to decrease in size. This morning it had gone down ¼ of a centimeter. Praise the Lord. Emily also got to breast feed today. It was a little awkward because he still has to be flat on his stomach, but he managed okay. It was really fun!
We also had some not-so-good news. The doctors said not to get too excited yet about the lack of swelling in his brain. Often times it can take up to a month before the baby requires a shunt… More waiting.
We were really excited about Carson’s ability to pee on his own, but it appears some urine may be refluxing back into his kidneys. They are doing a VUR test to check for that tomorrow. It may be a symptom of the surgery, or it could be from the Spin bifida. Please pray specifically for this tonight.
We also realized today that his feet are clubbing some. Not in the traditional sense where the toes curl down, but his feet won’t bend down past 90 degrees. Sometime in the future they will do physical therapy to try and help it.
Emily and I are going home today. It’s sad because we won’t get to spend as much time with him. Last year a friend of mine had a baby and I asked them, “So now that you have a baby, what do you do with it?” I guess now I know. You stare at him because you can’t get enough. Carson is the best little boy we could ask and we couldn’t imagine life without him. Thanks for your continued prayers.
Love you guys,
Nate & Em
4 comments:
Nate and Emily,
Praise God for answered prayer! As I am thinking of you this morning, I am thinking how God provides exactly what we need for each new day!
We continue to pray for healing for Carson and peace for you as you go home.
Peace,
Ruth and Dennis
Hi! I found your blog on the Our Little Gibblet blog. Congratulations On Carson!! He is beautiful! My son Grant is three years old, and he was born in 2005 with spina bifida. He had surgery to close his back and place a shunt at 4 hours old. I also have a blog chronicling some thoughts and things about G, etc. http://ruralfelicity.blogspot.com/
Nate & Emily -
It might be heartbreaking to leave the hospital without Carson, but realize that he's getting the best possible care and that he'll be home soon to make your family complete! Hang in there!
R
Nate and Emily,
My first child, Alexandra, was born 6 weeks premature and had hyaline membrain disease (respiratory distress syndrome) and had to be put on a ventilator and stay in NICU for a few weeks. I had to go home without my baby. That night I cried myself to sleep.
The days that followed were very busy because I went to the hospital three times a day to see her, touch her, talk to her and sing to her. Eventually I could hold her and then breast feed her.
After several weeks we brought her home . . . a tiny 5 pound baby but by 1 year she was 21 pounds!
That was 24 1/2 years go. Today she has a college degree, is married, and involved in ministry. It seems like yesterday. Your trials bring it all back to me. I pray rich blessings for your family.
Ileana Habsburg-Snyder, Northport
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